Keep your fingers crossed...NO SEIZURES TODAY!!!

Keep your fingers crossed...NO SEIZURES TODAY!!! 

They have raised dad's steriod from 2 times a day, to 3 times a day.  Dr. McGuire decided that dad needed to have his MRI before the 13th, so he is now having a MRI on Tuesday NIGHT at 8:45pm.  WOW

Surgery is set for Monday at 7:15...we have to be at the hospital at 5:30...and hopefully dad will be home by lunch time. 

Please feel free to write messages to him on here or on his facebook.  He checks both daily!

And Another....

Well about 12:40 last night, dad had a 3rd seizure.  I have no idea what is going on.  I have spent the last few minutes calling his different doctors to see what is going on. 

Dr. Brown is out of town so they are waiting on the doctors that is helping him this week to see if they are going to add another medicine to dad's collection.

Dr. McGuire's office is going to call me back about dad's medicines and his upcoming MRI.  Right now it is scheduled for August 13th...but we are waiting to see if they are going to move it up. 

GEEZ...I HATE CANCER!!

Today ended like it began...

Well this has definitely been a first.  For one, until today, dad had never had a seizure during the day and to add to his day, he had a second seizure tonight.  The second one lasted about 2 1/2 minutes and it scares us all to death.  Dad had a hard time breathing after the last one.  Billy had to remind him to take slow deep breathes. 

Tomorrow he is supposed to have his pre-op stuff and I want them to check his dilantin level.  With all the drugs he is on, you would think the seizures would be under control by now.  It takes so much out of dad after he has a seizure.

I know I have said this already...but I HATE CANCER and what it does to people!

What a way to wake up...

So dad started out this morning with a seizure.  He was in the bathroom when it started and he quickly got to the living room so he could lay down.  I hate these seizures.  They twist dad's body all up and then leave him without the use of his right leg.  They also drain him of any energy.  When I got up he had already had his seizure...but he was trying to drag his foot from couch to couch trying to get to the kitchen.  He is tired of these seizures too...they seem to get stronger and stronger and make him weaker and weaker...I HATE THIS DISEASE and what it has done to him!!!

Surgery...

So surgery has been set for Monday morning.  We have to go Friday and do dad's pre-op stuff to get him ready.  Surgery is going to be outpatient...dad hopes to be home around noon...lol

Happy Birthday Dad!

We went to see Dr. Kotwall, the surgeon, today.  He loves dads humor towards this disease.  I am now waiting to hear from them as to when dad's surgery will be.  The plan is for later this or the first part of next week.

I'll post when I know more.

Monday down...bring on Tuesday

So dad had a doctor's appointment today with Dr. McGuire.  He let the doctor know about his horrible headaches and his leg pain.  The headaches concerned him so he is having dad have another MRI to see if anything else is there.  Dr. McGuire prescribed a different pain med for his headaches...so we will get that tomorrow and see if it works any better. 

Tomorrow...Dad's Birthday...we go to Dr. Kotwall...hopefully will find out when his surgery is. 

Tired

Well since dad's last radiation...he has been extremely tired. He does a little bit and then has to rest. We had been told that the radiation could wipe him out from 6 weeks to 12 months. I hate to see him like this...I hate to see him so tired. The doctors have also given him Adivan to help with the seizures...and that makes him sleepy too.

This coming week is going to be busy again with doctors appointments. We go to see Dr. McGuire on Monday, dad's radiation doctor, and then we go to Dr. Kotwall, dad's surgeon, on Tuesday. Hopefully we will find out on Tuesday when dad will have his next surgery.

My Boys

Well I am at Teacher Academy and my boys didn't tell me dad had a doctors appointment. Dad thought I would come home instead of staying here in Greenville. I'll have to talk to them about being sneaky when I get home...lol

However, dad went to see Dr. Anagnost (Chemotherapist) today. He is sending dad back over to the Surgeon to have the spots in his chest removed. So we are off to see Dr. Kotwall next Tuesday, Dad's Birthday!

Dr. Anagnost is going to give dad chemotherapy. Once he is done with surgery on his breast and stomach, he will have chemo. Chemo will be in a pill form that dad will take for 5 days, be off 4 weeks, and then back on for 5 days.

This is all the info I have right now since I wasn't allowed to go to the appointment...when I find out more, I'll post more...

Since February

Life has changed dramatically since February. Dad was self-sufficent and could do anything in the world, but that all changed when he had his seizure. Since then, he has had a spot removed from his brain, a melanoma removed off his back, had radiation 3 different times, now has 3 new spots in his brain, 1 spot in his breast, and 2 by his belly button...and he is no longer driving. Dad has a rotation of 9 doctors that we now see either monthly or every 3 months. Along with his doctors, he also has a PET Scan and MRI every 3 months.

I hate this disease...it can hide out and appear when it wants! This awful disease has walked in and taken his freedom, his ability to drive, and be self-sufficent. He now has to take 2 handfuls of medicines a day, tell someone when he wants to go somewhere, and his house bound if no one is home or able to take him. I feel so bad...I want to hurt this disease like it has hurt our family. But at the same time, I feel so lucky. Lucky to have Billy, our families, wonderful friends, and a network of people ready to help if I need it.