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Wilmington, NC, United States

Thursday, September 23, 2010

2nd Round of Chemo: Night 1

Well it is 2:27am and we have been up for about an hour.  We thought this dose would be as easy as the first, but dad's doctor didn't give him Zophran this time and he has been sick and throwing up.  Neither one of us like to throw up, but who does, so I am sitting up with him.  I went to go to bed about half an hour ago and he started getting sick and wanted me.  Dad takes a nightly phenergan with his routine meds, but I gave him another one when we first got up...but that didn't stay down so I am hoping the 2nd one will.  So far, so good. 
I feel so bad for him...I want to take this sickness away...I will definitely call the doctors in the morning and get them to call in a prescription for Zophran. 

On the bright side...if you can actually say there is a bright side to cancer...dad did get his new walker this week...a big boy walker...woo hoo...thank you so much mom!!!  Plus he got his new wheel chair...he said he was practicing his wheelies the other day...I sure hope he was joking.  I'll have to post pictures soon...

Well I'm going to try going to bed again...5:30 comes early but I hate to leave him up sick.  CANCER SUCKS!!

Monday, September 13, 2010

Handicap Proofing...

So this weekend dad had a few seizures...they aren't as intense as they used to be, but they are staying in his chest now.  He says it feels like he is having a heart attack.  900mg of one seizure med and 400mg of another a day and he is still having seizures...I just wish they would go away.

Tonight I had class and I knew that meant dad would be home for about an hour by himself.  I called around 7:50 when I was on my way home, asked about his day and asked if he had fallen.  He said he had had a good day and told me what he wanted to eat.  When I got home, one of billy's trucks were here.  I just assumed it was billy, but come to find out it was brent.  Dad had fallen, broken the coffee table and called billy for help.  He wasn't close so he sent brent.  THANK YOU BRENT!!  He came to dad's rescue, helped him up, and moved the table out of his way. 

I am so stressed every time I leave the house and I know dad is by himself....

Tuesday, September 7, 2010

Stressed to the max...

Okay...so I can see that it has been quite a while since I have updated dad's blog...I'm very sorry to all of his friends and followers.

Well since the middle of August, dad has completed his first round of Temodar.  So far, so good...thank goodness.  He didn't get sick one time...and he still has hair..although it needs cutting.  Dad was also approved through the CancerCares program to have his Temodar for a year.  I could just kiss them!

We went back to the Chemotherapist last week and since dad did so good, they are raising his chemo from 435 mg to 550mg.  Now we have to wait and see if the company will approve the new dose...1 step forward and 2 steps back.  Hopefully they will...if not, I'm not really sure what we will do. 

Dad has started falling since his chemo...I have found him a couple of times in the floor in his room and once in the kitchen.  After that started, I called the doctors to see if we could get some in home help...dad has OT, PT and a nurse coming in now during the week.  He went today to get fitted for an AFO (Ankle Foot Orthoses.  Hopefully that will help with his control on of his right foot. 

We don't leave home now without his walker and wheelchair.  I am so proud of him for realizing he needed them.  He is a fighter and when I called for the in home help, he was mad at me.  I have a white board on his door that lets him know the day and where billy and I are.  His short term memory is shot so I thought this would help.  He also got a new toilet put in this weekend.  It is one that hopefully is taller for him.  We are looking at rails for the house too. 

Now if I can just get him on a schedule where he sleeps at night.  He was up and down all last night.  Ever time I hear him up, I get worried if he needs help or if he is going to fall.  I was fussing at him this morning at 3:00am...I feel awful for doing it, but he was trying to get something to drink and knew he couldn't carry his glass back to his room.  I desperately need a nap today.  I have started packing him a lunch box at night, but last night he said he had everything he needed.  I try and help him limit his wandering during the night, but I know he wants to get up and do his own thing...CANCER SUCKS!!