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Wilmington, NC, United States

Tuesday, September 7, 2010

Stressed to the max...

Okay...so I can see that it has been quite a while since I have updated dad's blog...I'm very sorry to all of his friends and followers.

Well since the middle of August, dad has completed his first round of Temodar.  So far, so good...thank goodness.  He didn't get sick one time...and he still has hair..although it needs cutting.  Dad was also approved through the CancerCares program to have his Temodar for a year.  I could just kiss them!

We went back to the Chemotherapist last week and since dad did so good, they are raising his chemo from 435 mg to 550mg.  Now we have to wait and see if the company will approve the new dose...1 step forward and 2 steps back.  Hopefully they will...if not, I'm not really sure what we will do. 

Dad has started falling since his chemo...I have found him a couple of times in the floor in his room and once in the kitchen.  After that started, I called the doctors to see if we could get some in home help...dad has OT, PT and a nurse coming in now during the week.  He went today to get fitted for an AFO (Ankle Foot Orthoses.  Hopefully that will help with his control on of his right foot. 

We don't leave home now without his walker and wheelchair.  I am so proud of him for realizing he needed them.  He is a fighter and when I called for the in home help, he was mad at me.  I have a white board on his door that lets him know the day and where billy and I are.  His short term memory is shot so I thought this would help.  He also got a new toilet put in this weekend.  It is one that hopefully is taller for him.  We are looking at rails for the house too. 

Now if I can just get him on a schedule where he sleeps at night.  He was up and down all last night.  Ever time I hear him up, I get worried if he needs help or if he is going to fall.  I was fussing at him this morning at 3:00am...I feel awful for doing it, but he was trying to get something to drink and knew he couldn't carry his glass back to his room.  I desperately need a nap today.  I have started packing him a lunch box at night, but last night he said he had everything he needed.  I try and help him limit his wandering during the night, but I know he wants to get up and do his own thing...CANCER SUCKS!!

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